I want you all to answer the following questions honestly. You’re not hooked up to a lie detector so nobody will know but you. There’s not a single person able to answer these but you. Okay, ready?
- Do you ever skip your scheduled medication?
- When your doctor asks if you are taking all your medication do you say yes but really mean no?
- Are you afraid to tell the doctor the truth?
- Do you ever self-medicate?
I have skipped medication. I have lied to the doctor about it. I am afraid to tell them in fear of their judgmental looks. I have taken an extra dose of Furosemide when I felt swollen.
Am I alone in this boat?
Why do we do this? We are only hurting ourselves the doctors know what they are doing. For me, it’s simple. NO I do not do this on a regular occasion. YES it has happened a few times.
Let me explain. I’ve skipped a medication when I accidently fall asleep before I am supposed to take it. YES I have taken an extra dose of my water pill a few times because, honestly, the doctors are not with me when I wake up in the morning. Nobody can tell me how I feel. That being said, I have FULL permission from my doctor to do this, only with my water pill and only if I really feel the need.
My doctors trust me, so I must trust them. This is the hardest relationship I have. Why? I see them once a month, sometimes every two months and they base their judgments on how I look, how I tell them I feel but mostly the blood work. They cannot feel the aches or the uncomfortable tingling of swollen hands in the morning.
I am not advocating that you do this. I’m just telling the truth and trying to figure out why we do this.
What do you all think?
A few side notes:
THANK YOU to everyone who has emailed me regarding an interview and a chance to be on The Lupus Loop! I’ve been responding to everyone but if you haven’t received an email yet, do not worry, you’ll get one within the next few days!
The 2014 Lupus Gala is happening on November 24th at the Museum of Natural History! It is a celebration of breakthroughs in lupus research that are transforming patients’ lives and bringing us closer to a cure. The Gala Honoree, Iris Cantor, is passionate about improving healthcare and furthering medical research that will enhance the quality of life – goals the S.L.E. Lupus Foundation and the Lupus Research Institute deeply share and foster. The event’s Scientific Honoree, Dr. Bahija Jallal, is recognized for helping MedImmune fulfill its commitment to the lupus community as it champions innovation, pioneers scientific discovery and pursues safe and effective new treatments. The S.L.E. Lupus Foundation and the Lupus Research Institute raises millions each year at its annual Life Without Lupus Gala to support innovative novel research that can improve care while advancing towards a cure.
OH, and legendary Tony Bennett is the entertainment!!!